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May 15

Regional Roundtable for Clinical Trials

August 8, 2015 – August 8, 2015

5985 Cara Road

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LHF name stackedJett Foundation

New Regional Research Roundtables Will Explain Ins and Outs of Clinical Trials

There are currently approximately 62 ongoing clinical trials for Duchenne listed on clinicaltrials.gov, and 68 listed as completed. Several pharmaceutical companies have therapeutics in the approval process with possible approvals for at least 3 drugs in 2016! It is an exciting time for Duchenne, but it can also be confusing for those who have to make important decisions for their loved ones.

The Jett Foundation is partnering with the Little Hercules Foundation, as well as clinicians and other experts around the United States in a series of Regional Roundtable clinical trial discussions. These events will help to inform and create discussion around clinical trial options both locally and worldwide currently underway or recently completed. The events serve a dual purpose for patient participants to receive information from sponsors and for sponsors to receive input from patient participants on what is important to them in clinical trial settings.

There is no cost for this event and lunch will be provided.  Children are welcome and supervision will be provided.  Just please make sure you indicate how many you will bring and their ages on your registration.

In order to assist us with providing the most pertinent information to the group, please complete the following confidential survey:  https://www.surveymonkey.com/s/RSPZMTB.


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