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Archive for March, 2014

21
Mar 14

10tv Interview – Push To Fast Track Drug To Help Children With Deadly Disorder

Click here to see our story about pushing the FDA to approve safe, effective treatments for Duchenne.

19
Mar 14

The Race To Yes!

As you know, Jackson, Noah, and Jacob all have Duchenne muscular dystrophy, a debilitating muscle-wasting disease. Duchenne MD is the #1 genetic killer of children worldwide. For the first time ever, a new medicine has proven safe and effective to treat the disease! But only 12 kids have access to it in a small clinical trial. Please sign the White House petition to help get this and other new therapies approved quickly. We need 100,000 signatures by March 29 to get a White House response. Anyone 13 or older can sign here:

www.theracetoyes.org

Once you have signed, please consider telling friends, colleagues, customers — anyone who might spend a minute or two to sign the petition. This regulatory policy not only impacts our community, but ALL drug approvals for treatment of rare diseases that afflict children in this country.
Click here to watch two moms whose sons have Duchenne explain the issue on Fox Business The Willis Report yesterday (video is approximately 6 minutes long).
As always, thank you for your support.
14
Mar 14

Pinot and Purses

April 24, 2015 – April 24, 2015

4199 W. Dublin-Granville Rd

View MapMap and Directions | Register

Description:

April 24, 2015

Grab your girls and join us for Pinot and Purses.  Combine an upscale, trendy venue with premiere entertainment provided by some of the most talented comedians and performers in Central Ohio, with a live and silent auction of new and very gently used designer handbags. Top it with raffles, door prizes, gourmet sweets, and PINOT, of course – what more could a girl ask for?!  GIRLS NIGHT OUT…FOR A CA– USE!!  We are only selling limited tickets for this event in order to keep it fun and intimate, so get your tickets early.

Like the Pinot and Purses facebook page  to preview some of the awesome merchandise up for auction.

Register

13
Mar 14

DuchenneDash 2015

July 11, 2015 – July 11, 2015

View MapMap and Directions | Register

Description:

DuchenneDash Logo 2avery_gatorrun_logo

July 11, 2015

Join us for DuchenneDash, a 5k DOG FRIENDLY walk/run.  This year’s event will take place at Highbanks Metro Park in Lewis Center.  Music, beautiful scenery, snacks, and free treats for our four-legged supporters!  Proceeds will fund promising research aiming to cure Duchenne muscular dystrophy.  All participants will receive an event t-shirt.  For safety reasons, please keep dogs on a leash for the entire event.

Sign Up

Registration starts at 7:30 AM / Race begins at 8:30 AM

 Please visit our generous sponsors:

Warrior Level:

Brooksedge Day Care Center

Champion Level:

DogWatch Hidden Fences of Columbus

Soldier Level:

OneMain Financial

The Tornes Family

Recruit Level:

Cornerstone Speech Therapy

Ashland Specialty Products

Credit Union of Ohio

Columbus First Bank

Mackenzie White Photography

Coldwell Banker King Thompson-Jenny Gill, Realtor

Menchie’s Frozen Yogurt

Fastsigns

Registration deadline:

Participants registered by July 4 are guaranteed a race t-shirt.  Registration will remain open until July 10.  Participants can also register onsite on July 11.

Packet Pickup:

There will be 4 packet pickup dates/times, as listed below–

Avery Elementary School (4388 Avery Rd, Hilliard, OH 43026)

July 7 from 6-8 p.m.

July 8 from 10 a.m.-noon

Fleet Feet Sports (1270 E. Powell Rd, Lewis Center, OH 43035)

July 9 from 4-7 p.m.

July 10 from 10 a.m.-1 p.m.

Raffle/Merchandise:

We will be selling raffle tickets for a chance to win many different items which can be viewed on our DuchenneDash facebook page by clicking here.  Tickets are 1 for $5, 3 for $10, or 10 for $20.  We will accept credit/debit cards.  We will also be selling Little Hercules Foundation merchandise and will accept cash or credit card.

Race Day Info:

The race will start and end in the Big Meadows Picnic area.  We will have signs posted.

Register

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