News Archive: May, 2025
Approved is approved.
Posted on May 5, 2025
Little Hercules Foundation, joined by 57 patient advocacy organizations serving rare disease patients and their families, sent this letter to Independence Blue Cross Blue Shield (IBX) regarding their policy excluding coverage of all treatments approved via FDA's accelerated approval pathway. Thank you to our fellow rare disease advocates, including many DMD organizations, that joined our efforts to change this dangerous policy.
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