Duchenne can be a long and complex journey. Caregivers find themselves wearing multiple hats – parent, advocate, educator, scientist, fundraiser, and therapist - just to name a few. We try and take some of the time and guesswork out of internet searching. We work to identify meaningful, outside resources across the United States that can provide a life-line for some key needs one may face when living with Duchenne. No one should have to walk this path alone.
This list is in no way exhaustive and only represents a small number of resources you may find helpful.