Two Foundations. One Goal...

To Support Duchenne Families.

Little Hercules Foundation and Team Joseph have a strong history of working together to fund promising research.  Recently, we decided that while we believe in the promise of future treatments, we also see the need to help families right now.  In this moment.  We identified two priorities—to offer families financial assistance with expenses related to the care of a child or young adult with Duchenne, and to provide help and expertise to families who need access to recommended treatments and equipment, clinical care, and social services.

The purpose of the Duchenne Family Assistance Program is to remove barriers preventing you from getting what you need to live your best qualify of life.  To work effectively and efficiently, Little Hercules Foundation will provide case management services to patients and caregivers who have been denied access to treatments, clinical care, equipment, and social services, as well as assist you in navigating government and social service programs available to you. Team Joseph will take the lead on assistance that includes, but is not limited to, purchasing equipment (scooters, manual wheelchairs, shower chairs, etc.), accessible ramps, transportation to clinic visits, vehicle modifications, and home modifications.  Assistance is also available for educational opportunities, such as conferences, so families can educate themselves about the therapeutic landscape and improved standards of care.

The process is simple, and the only criteria for applying is a diagnosis of Duchenne muscular dystrophy.


APPLICATION FOR ASSISTANCE

If you have been denied access to an approved treatment, a clinical care recommendation, or any necessary equipment, the Duchenne Family Assistance Program can help.  Our Program Managers will work with you on the appeals and approval process regardless of whether your denial came from a private insurer, Medicaid, Medicare, or a combination of these.

Our team can also help you obtain Medicaid waivers and appropriate social services in your state.  Let us know what you need, and we will work together with you to get it!

If you’d like to apply for this free assistance, please start by clicking on the APPLY FOR HELP button below and you will be linked to our online application.  Following the successful completion of your application, someone from the Duchenne Family Assistance Program will contact you. If you have any questions, please email info@duchennefap.org or call us at (833) 428-3301.

APPLY FOR HELP